Wednesday, September 24, 2014

Living With Chronic Diseases (Part 1)

Living with chronic conditions can be tricky, especially if the symptoms are not constant or even consistent. Currently I live with IBS and other lower GI issues, which I have had for almost 20 years. Sure, the symptoms are annoying and can be severe at times, and with a family history of colon cancer, sometimes gives me anxiety, especially during a flare up which causes me to lose a good amount of blood (TMI?).
A more recent condition that has been diagnosed is hypothyroidism, which is basically my thyroid not wanting to participate in all of the responsibilities it is usually tasked with completing. I only found that it wasn’t working when I went in to the doctors (reluctantly) when I was in pain, living with a 5/10 on the pain scale, with some moments being 25/10. I had back surgery about 10 years ago for two herniated discs (laminectomy of L4-L5 and S1-S2), which at the time I had tried to “walk off.” Yes, I can be stubborn at times. Well, after seeing the doctor, I had to get a check up, including labs since the last time I had been to a doctor was five years ago, when I was a student at Oregon State University, and that was just for birth control (Mirena, which I highly recommend), so no labs were done. The results of my lab were good except for my thyroid; I will be starting medication to help with managing the symptoms this week.
I did some research and found out that the thyroid is responsible for more than metabolism, but also plays a role in heart and digestive functions, muscle control, brain development, and bone maintenance, as well as nerve entrapment syndromes, fatigue, depression, and irritability (Roberts & Ladenson, 2004). These symptoms, along with my weight gain and chronic back pain, in conjunction with living in a place that challenges my sanity all combine for a miserable existence, which are exacerbated by the hot weather associated with living in West Texas. 
However, we are taking steps to change what we can...moving to another state, taking medication, trying to stress less and get more sleep, as well as keeping active when my body allows and attending physical therapy a few times per week. It’s hard to separate chronic illness symptoms from personality, but I know that I am capable of being happy, and I know that with some conscious changes, I can regain that feeling.


Reference

Roberts, C. & Ladenson, P. (2004). Hypothyroidism. The Lancet, 363(9411), 793-803.

Sunday, September 7, 2014

A Pain in my Arse

An occasional sharp pain leads to a constant feeling of despair, as the anxiety of not knowing if the next step will be painless or send you into a realm of pain that you never knew existed. Trying to put mind over matter lasted only so long, as the facade began to tarnish and crack. There is no denying or hiding the cringes that accompany the unseen pain; each step is a weary endeavor, with a time bomb flashing in your peripheral vision. It would almost be easier if it was a broken bone, as it is a visible injury. However, much like the mental illness battles, the hidden ones often hurt more.

Having had tried to “walk off” two herniated discs about a decade ago, I am not one to quickly admit defeat or even admit that I am human. Being a dedicated follower to the motto “Toughen Up, Buttercup,” I tried to pick myself up and dust myself off. But this time I couldn’t. This pain was different than the disc injury, as there were no tingling limbs, but rather just a sharp pain and achiness. I tried to heal myself through the use of PiYo (a mix of Pilates and yoga) and herbal supplements. Sure, most people would say, “Why don’t you just go to the doctors if you are in that much pain?” Well, it’s because as a freelance writer and graduate student (with the latter now on hold due to my injury, as it is hard to sit down and concentrate for long periods of time) and don’t have health insurance. I would have qualified for Medicare due to my low income status, but the lovely governor Rick Perry decided not to expand the program. However, due to my loving (and persistent) boyfriend, I started the process of obtaining my medical care through the Veterans Administration, as I earned the status of disabled veteran due to my 30% disability rating that I incurred over the course of my 12 years of active duty.

It took about three month to navigate the system, as my application for coverage was sent to the wrong address, then when I called to follow up about two months after I sent it off, I was transferred to the publications office (perhaps this is an example of why so many are disenchanted with the VA). I called back and was able to reach a very helpful woman (Betty) who told me that I could email her a copy of my application and DD-214 and she would help me to get the ball rolling. Two weeks after I sent Betty the paperwork, I called back to check on my status once again, and lo and behold, I was in the system and could finally obtain medical services! Yay! I was told that I should go to the local VA clinic and make an appointment. I grabbed my wallet and keys, then off to the VA I went. Well, it appears that all of the doctors have quit working at that location...which was built this year. Sure, they have some doctors from other locations filling in, but there are no doctors assigned and I was not able to make an appointment at that time, but they would call me when there was an opening. That wasn’t going to cut it though.

The next day the pain was still bad (I had been living in a 6/10 -7/10 of pain on a regular basis, with 25/10 on occasion) and I wasn’t sure that I could hold on until the local clinic had an opening. I called the larger clinic, which was about 70 miles away, to at least try to make an appointment. I called the number and was stuck in voice prompt hell and then when I called back and told the operator that I was trying to make an appointment, she transferred me to someone’s voicemail (just another reason to be disenfranchised with the system). Well, due to my untrustworthy nature of voice mail, I decided to get in the car and drive that 140 miles round trip...to at least make an appointment. I am glad I made that decision though, as they told me to go to the VA Urgent Care (which is in the same building) and I was seen, got a shot in the ass, and even got a few x-rays done.

Upon examination of the x-rated pictures (hey, it’s pictures of my innards), it was discovered that I have some narrowing and compression of some of my discs, a little curvature of my spine to the right (my spine is a Republican? Crap) as well as a few bone spurs in at least one of my vertebrae. So, at least there is something wrong and it’s not all in my head. They gave me a few prescriptions and made a few appointments for me at the local clinic that is closer to where I live, including a lab appointment. It has been a good five years since I have had any blood work done or even seen a doctor other than the one I saw when I was a student at Oregon State University for my Mirena (I highly recommend it, btw).

The doctor I saw at the Urgent Care clinic told me that if the medications don’t work, that I would need an MRI. Well, it looks like that will be in my future, as the pills I got do diddly squat. As it is, I am taking one of each (a pain pill and a muscle relaxer) and a Doan’s pill every couple of hours. He told me that the muscle relaxer should be taken at night, as it would knock me out. Well, that is not the case either. Even taking this concoction, it hurts to: walk, stand, stand up from a seated position, sit, roll over in bed, get out of bed, pull my pants up, and just about anything and everything else. However, the annoying thing is that the pain is not constant or consistent, which contributes to the anxiety and muscle stress due to the constant unknowing, bracing myself for the possibility of pain.


I may have to go back to the clinic that is further away, as the pain is getting worse, as before it went away a bit as my back loosened up a little, but that is not the case anymore. The anxiety is challenging, and so is the depression that accompanies the fact that I know what my body has been capable of in the past: I have completed two Tough Mudders, enjoyed MMA training, kickboxing, Insanity programs, lifting heavy things, and when I moved to Texas, I loaded the truck myself, alone. Feeling like a shell of who I was before is hard, and even more so since I have used workouts as a form of therapy, and now I am not able to do such things. So, until I am able to resume my normal activities, I need to find other outlets, such as writing, reading, and trying to take care of myself so I can come back stronger than ever.